In case you haven't heard, word is that NIH and the FDA have confirmed the original Science article which found an association between chronic fatigue syndrome and the newly identified retrovirus called XMRV. But, alas, the news is not really out until it's out. And so far it isn't really out.
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Love your site. Great work - thanks.
ReplyDeleteLoved this, Priscilla... Your drawings pretty much sum up how I feel right now! :-) Thanks for the smile.
ReplyDeleteWe're so good at waiting. Thanks for making the wait a little more fun!
ReplyDeleteLooks like we'll be waiting a little longer. Grr. They're holding off on publishing the results.
ReplyDeleteWhoever leaked the NIH findings originally has my gratitude. The government can try to cover up the findings, but not without us knowing they did it.
Yes I've heard the association has been confirmed, but apparently only in the US population. It isn't found in people with CFS in Australia (according to my specialist).
ReplyDeleteThanks all. And thanks for the link, cinderkeys. That's maddening.
ReplyDeleteAmanda, as far as I know, no studies have been published on Australia yet. I think I will wait to draw conclusions about that population until we have some actual science to look at. Reports often say that the negative studies have not found an association with CFS. In fact, the negative studies have not found the virus at all, which makes them more than a little suspect.
Holding off on publishing? That's weird. So the findings contradict each other. All the more reason to publish them. This is science, not a PR department.
ReplyDeleteLooking forward to the study finally being released. I do know of at least one person in Australia with a positive diagnosis. (Not referring to myself, I haven't been tested.)
ReplyDeletei've been tested and not for xmrv but tested positive to 45% of the hiv virus envelope with dr. garth nicolson...xmrv is a total waste of time...aidan walsh
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